New Shorter Version of Mom Needs To Lie Down

Dr. Eleanor Stein and I have worked together to create a shorter version of Mom Needs to Lie Down: The years and lives slept away by ME/CFS.

The purpose of this video is to summarize the illness and its symptoms for a more general use.

Stay tuned for updates on where else you might be able to see this video soon.

View this video on YouTube here.

Article on ME/CFS in the Washington Post

It seems that finally ME/CFS is getting more and more mainstream coverage. Below is a link to the Washington Post article by Julie Rehmeyer. It was published in the Health & Science section of the website on October 6. The author, Julie, was diagnosed with ME/CFS over eight years ago and still struggles with the lack of knowledge, support, and research that plagues this illness. 

After reading this well-written, honest article, my eyes scanned to what is commonly the most disappointing part of an online posting (the comment section). The article eloquently points out some of the common misconceptions about the disease and why doctors and scientists have a hard time agreeing on a common definition, so it's easy to understand how the general public is especially mystified by this illness. However, the comments I read at the bottom were mind-blowing-ly ignorant. It's hard to believe that after reading Julie's article where she paraphrases an ME/CFS specialist who also works with HIV/AIDS patients as saying, "that if she had to choose between having HIV and having CFS, she’d unquestionably choose HIV."  There are approximately the same number of Americans (one million) living with HIV as there are Americans living with ME/CFS, yet HIV/AIDS gets three billion dollars for funding and research and ME/CFS only gets five million dollars. This disparity is due to lack of knowledge, specialists, and researchers in the field.


Please read this article for yourself and feel free to link to other well-written articles on the topic that you've come across.

March 6th Screening

Thank you again to everyone who was able to attend the screening on March 6th of Mom Needs To Lie Down: The years and lives slept away by ME/CFS. So far I've gotten lots of positive response in the form of emails, YouTube comments, and even a blog post!

Here are some pictures from the screening at the Winnipeg Free Press News Cafe.

Winnipeg Free Press News Cafe

Larissa Peck, Joanne Kelly, and Danielle Da Silva

Meghan Franklin, Zach Samborski, and Megan Douglas

Panel discussion

From left to right: Taylor Cole, Dr.  Eleanor Stein (on the TV), Dr. Mindy Campbell, and Lorilee Leslie-Cole

Listening to Dr. Eleanor Stein via Skype

Useful reading material about living with ME/CFS

Taylor Cole with Denis and Marianne Litster

Thank you to everyone for the support and kind words. Although the screening and school portion of this project is over I am not finished. I will continue to use my video editing, media relations, and communications skills to help those who suffer from ME/CFS.

This blog will continue to be updated.

If you are interested in contributing please send me an email:
momneedstoliedown@gmail.com
taylesliecole@gmail.com

Mom Needs To Lie Down: The years and lives slept away by ME/CFS

The screening for Mom Needs To Lie Down last night was a success! Thank you to Dr. Mindy Campbell, Dr. Eleanor Stein, and Lorilee Leslie-Cole for being part of the panel. The discussion following the screening was captivating and enlightening. Big thank you to the Winnipeg Free Press News Cafe for letting me host my event there. The service and appetizers were divine.

More pictures to come soon!

Watch the video on YouTube here.